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Rare Disease Research Funded by Medical Ministry

Most public research dollars are spent on diseases that affect large populations. Rare maladies, sometimes called orphan diseases, are seldom pursued. To remedy that, Christian medical researcher Dr. Jimmy Lin started a nonprofit to combine genomics with crowd funding. The Rare Genomics Institute pairs researchers willing to perform whole-genome sequencing for victims of rare diseases with social media fundraising campaigns that let family, friends and concerned strangers help pay for the work. Lin’s compassion and innovation raise the question: How might your organization connect people’s needs with innovative ideas, financial resources and people dedicated to providing service and ministry? Read about Lin’s project and consider the reflection questions in the context of your ministry concerns. The article is housed on Faith & Leadership, an online resource from Leadership Education at Duke Divinity School.






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